Anspar Foundation
The Cure HHT Journal application allows you to record and manage personal health information on your device.
When you use the application independently, all information you enter is stored locally on your device. Anspar Foundation does not collect, receive, store, or have access to your diary information. The application does not transmit your information to Anspar or any third party.
You can use the application without participating in a clinical study or research program.
If you are enrolled in a participating clinical study or research program, the study sponsor may provide you with a Linking Code.
When you enter this code into the application:
Entering a Linking Code does not itself transmit your diary information.
Participation in a study is voluntary and subject to separate enrollment, consent, and privacy documentation provided by the study sponsor or research organization. Those documents govern the collection, use, disclosure, retention, and protection of information transmitted in connection with the study.
The information you enter into the application remains under your control while you use it independently.
Because Anspar does not receive or maintain this information, Anspar cannot access, retrieve, correct, or delete it on your behalf.
Deleting the application may result in the loss of locally stored information, depending on your device’s operating system and backup settings.
Anspar Foundation may update this notice to reflect changes in the application’s functionality or applicable requirements. The current version will be published on our website.
For questions about this notice or the application’s privacy practices, please contact Anspar Foundation using the contact information provided on our website.